Beacon-10
Network Australia
To Tamoxifen or not?
The Network is on
into account. A number of variables
have to be considered and, unless we are
Breast Cancer Network Australia
has moved its office to Camberwell,
This is a question facing many
women diagnosed with breastcancer, as Tamoxifen increas-
prepared to be persistent, the answers are
ingly plays a role in treatment protocols.
not always forthcoming.
Tamoxifen citrate has been on the
The other part of the equation is
Our mailing address remains the
market for many years. It is a non-
balancing the potential benefits of
same – PO Box 4082, Auburn South,
steroidal drug, or synthetic type of
Tamoxifen with the possible side effects,
Victoria 3122 – but please note our
hormone, that has a powerful anti-
which can be quite severe.
new contact details.
oestrogenic effect on breast tissue, which
This issue of
The Beacon addresses
Phone: (03) 9805 2500
makes it a potentially useful drug,
some of these questions for women who
Fax: (03) 9805 2599
especially for women whose tumours are
are taking, or considering taking,
oestrogen receptor positive.
Tamoxifen as part of their treatment
In other parts of the body, Tamoxifen
plan following a breast cancer diagnosis.
can mimic oestrogen. This can promote
We put some of the most common
bone strength and reduce heart disease,
questions to
Dr Fran Boyle, a Sydney
but the effects may also be less desirable,
medical oncologist. We have also
increasing the risks of endometrial or
included an article by
Sally Crossing,
uterine cancer and blood clots.
describing the process she used to decide
We have evidence that Tamoxifen has
whether Tamoxifen was right for her.
undisputed benefits for many women.
This is a topic of concern for many
For others the benefits are less clear.
women. Since announcing that this issue
It can be difficult to find out what the
of
The Beacon would feature
percentage benefit of taking Tamoxifen
Tamoxifen, we have received a number
for five years may be for an individual.
of letters and calls welcoming access to
Each woman's situation must be taken
more information.
Full-time executive officer for Network
In a significant move, which reflects
its enormous growth, Breast CancerNetwork Australia has appointed afull-time executive officer.
Gil Paulsen is well known to
Victorian Breast Cancer ActionGroup members, as she is currently itssecretary. She was previously the
Victorian co-ordinator for the
National Breast Cancer Centre.
Gil has wide professional experience
OLYMPIC TORCH BEARERS 3
in the breast cancer area and brings a
wonderful array of skills to the
SSUES OF CONCERN
Network, including project manage-
MY JOURNEY
ment, tertiary teaching and running
her own consultancy business.
ETTERS TO THE EDITOR
Welcome Gil.
NEW SOUTH WALES
We are confident that 2000 is
Lymphoedema is clearly on the
On Australia's Breast Cancer
going to be a great year for
agenda, thanks mainly to
Day, we displayed the Field of
making a difference for people affected
consumer concerns. Women from
Women silhouettes in the corridor of the
by breast cancer.
Victoria, and other states, have been
Sir Charles Gairdner Hospital, as part of a
Twenty-one graduates from the
involved in developing research priorities
joint display by the hospital and
Consumer Advocacy and Science
for the lymphoedema summit.
BreastScreen WA.
Training Program are already finding
Victorian consumers are also helping
Some of our members were able to talk
slots for themselves on committees.
re-write the instructions given to women
with women having treatment for breast
At the annual general meeting of the
following surgery. This will be launched
cancer. Another member volunteered to
Breast Cancer Action Group NSW, we
at the lymphoedema conference in
be photographed having a mammogram
developed a structure for handling
Melbourne during April.
for the commercial television channels.
activities and revisiting our priorities.
Contact: Sue Lockwood (03) 9878
Our aim for the new year is to increase
A large donation from the Rylstone/
0736 or
[email protected]
our knowledge of breast cancer treat-
Kandos Breast Cancer Appeal will be
ment, management and issues. A major
used to help women in the Central West
objective is to encourage the placement
access radiotherapy treatment.
of breast care nurses. An inaugural
We look forward to welcoming the
meeting has been held along with the
Network's Dragons Abreast racers in
Lake Burley Griffin will never be
Cancer Foundation.
March for the finals. The BCAG NSW
the same now that
Dragons
Later in the year, the group will co-host,
team came second in its first regatta
Abreast has taken to the water!
with the National Breast Cancer Centre
before Christmas.
About 22 women have registered their
and the Cancer Foundation, a forum for
Contact: Sally Crossing (02) 9436 1755
interest and we have been averaging 10-
women with breast cancer.
or
[email protected]
15 at our Thursday morning training.
Contact: Carol Bishop (08) 9489 7012.
The most exciting outcome is that it is
truly a Network team – we have women
from the ACT Breast Cancer SupportGroup, Bosom Buddies, Queanbeyan
The Department of Health and
Support Group and women who do not
Things have been a little quiet
Human Services is conducting a
belong to a group.
over Christmas and New Year,
state-wide review of access to services for
The closing date for the raffle for ‘The
with quite a few members away on
Tasmanians at risk of, or experiencing,
House that Bev Built', which will benefit
holidays. Those left behind continue to
Bosom Buddies, has been extended until
sell our lovely calendar – which has been
The Tasmanian Breast Cancer
May 31. Phone
Bev Higgins on (02)
well received.
Network received a draft copy of the
6231 2658 for tickets.
Three of our group had an interesting
discussion paper for comment. We were
Funding for prostheses is part the ACT
and positive morning tea with our
not among those consulted before this
health budget due to successful lobbying
Minister of Health recently.
draft was released, but hope to ensure we
from Calvary Hospital and ourselves.
We are all still looking for any old
are included in future discussions.
Contact: Anna Wellings Booth (02)
St Marys, on the east coast, has worked
6247 8470 or
[email protected]
Contact: Sue Tully (08) 8927 3327 or
hard to raise money for a laser machine
for treating lymphoedema.
During January,
Prof. Neil Piller and
Open communication channels are
his team from Flinders University in
important. Until now, we have kept
South Australia were in St Marys to train
We at Breast Cancer Queens-
all members' names and addresses on
fifteen health care professionals in the
land are looking forward to a
a central database in Melbourne.
use of the laser. A seminar for patients
year packed with interesting events.
However, we would like to give our
was also well attended.
Plans are afoot for a public meeting to
state representatives a list of members
The clinic should be fully operational
be held in conjunction with the National
for their state, so that they know who
by the end of March.
Breast Cancer Centre and the Queens-
and where you are.
Contact: Pat Mathew (03) 6492 3257 or
land Cancer Fund.
These lists would be carefully
More about that next issue.
guarded, but if you do not want your
Sadly, one of our founding members
name given to your state representa-
If your group would like to highlight
has had a recurrence, so we have rallied
tive, please notify this office by the
an activity or a project, contact your
around to support her.
end of March.
state representative to have it in-
Contact: Janelle Gamble (07) 3353
– Lyn Swinburne,
cluded in the next ‘State Round-Up'.
4151 and Leonie Young (07) 3341 7570
National Co-ordinator
or
[email protected]
Network ‘think tank'
As this issue of
The Beacon was This involved revisiting the ‘Making a
going to print, a national
Difference' report from our 1998 Can-
‘think tank' was being held in
berra conference and attempting to
Melbourne on January 28-29.
prioritise the many issues facing us, as
The state representatives demonstrated
well as clarifying the responsibilities of
their commitment to the Network by
the state representatives and the national
being meeting all their expenses for this
board. Formulating the plans for this
year's Field of Women was high on the
The key task was to determine how
agenda. Watch for a think tank report in
best to achieve the Network's objectives.
the next issue of
The Beacon.
Dragon boat update
NT members were represented at the
The Network has been inundated
Australia Day races on Lake Alexander
with requests for its pink enamel badges.
The dragon boat team has a
name –
Dragons Abreast.
Representing Breast Cancer
and at the Chinese New Year regatta.
Thank you to those of you who
Network Australia (BCNA), our major
BCNA will be well represented at the
included a note letting us know how
sponsor is AMP. Other sponsors are
Australian National Titles by Dragons
much you value
The Beacon and the
Bakers Delight, Puma, Sydney Dragon
Abreast – in pink lycra ‘rashies', the
work of the Network.
Blades, Dragon Boat Northern Territory
team will stand out!
We were also touched by the number
and the Southern Cross Club, Griffins, in
The National Titles will be held on
of women who wrote, ‘I will wear my
March 18 at the Penrith Regatta Centre
badge with pride'.
NSW members of the team have
– the official Olympic course. Supporters
For a badge, send a $5 cheque or
already competed in local regattas. The
are welcome. We'd love a cheer squad!
money order made payable to Breast
ACT is proving to be courageous –
– Michelle Hanton,
Cancer Network Australia. Include a
training on Lake Burley Griffin at 7am.
National Dragon Boat Co-ordinator
stamped, self-addressed envelope.
Special thanks to David Lorem for his photographsat the ‘think tank', including the badge above.
Olympic torch bearers
We know of five breast cancer
survivors who have been chosen to
help carry the torch to the opening
ceremony of the Sydney Olympics.
They are:
•
Lyn Swinburne, the Network's
•
Pat Mathew, state representative
for Tasmania.
•
Raelene Boyle, former Olympian
Madeleine has arrived
and Network board member.
•
Rosanna Martinello, leader of the
We are indebted to the Japanese
Younger Women's Group for the
Madeleine has arrived in
Melbourne and is being
Engine Centre, TNT Automotive,
NSW Breast Cancer Action Group.
stored by Patterson Cheney.
the Territory Insurance Office, AIM
•
Felicity Hay, presenter of the
Keep
Madeleine, of course, is a beautiful
Insurance Melbourne and Patterson
Abreast video, produced by the
1954 vintage BMW donated to the
Cheney in Ringwood.
Sydney Breast Cancer Institute in
Network by Darwin woman,
Madeleine
Melbourne network member,
Brian
conjunction with the National
Luck (see story in
The Beacon Issue 9).
McDonald, is seeking advice and
Breast Cancer Centre and AMP.
Transporting this lovely old car was
developing a plan for us to make the
If other women have been nomi-
nated by their local communities, let
made possible thanks to the help of many
most effective use of this wonderful gift.
us know who they are and we will
Northern Territorians, including the
Madeleine Luck has also come up with
keep you informed about the progress
Minister for Transport,
Mick Palmer,
another brilliant plan to help women
of their training.
who used his contacts to make it happen.
recovering from breast cancer treatment.
can snap shut, and so in these parts ofthe body it works just like oestrogen.
That is why it has some of the benefits of
oestrogen on these organs, like prevent-ing heart disease and osteoporosis.
Is Tamoxifen safe? What are the majorside effects?
There are two categories of side effect:
Blocking of oestrogen in organs withreceptors the same as the breast, e.g.
ovary and pituitary glands, interfer-
Answering your questions
ing with the menstrual cycle andcausing hot flushes and vaginaldryness as at menopause. These side
effects are common at least initially.
Depression, like that at naturalmenopause, may also be caused by
Who should use Tamoxifen?
by Dr Fran Boyle,Sydney medical
blocking of oestrogen action in the
Tamoxifen is useful in:
oncologist and
Women (over age 40 generally) with
clinical adviser to the
Acting the same as oestrogen in
National Breast
newly diagnosed breast cancer that
organs with the other kind of
Cancer Centre
is hormone receptor positive, where
receptor, e.g. causing clots in veins
it reduces relapses, improves survival
and rarely, growth of the lining of
and reduces the chances of a new
the womb (endometrium), and even
cancer in the other breast, heart
more rarely, cancer of the womb/
disease and osteoporosis.
uterus (2-3/1000). These side effects
Women with relapsed breast cancer
are less common. Nausea is probably
that is receptor positive, where it has
caused by a temporary effect on the
a response rate (shrinks or stabilises
Tamoxifen is shaped like oestrogen on
liver, and passes within a few weeks.
the cancer) of about 50% of women.
the front end, but has a stick coming out
This is particularly likely if the
the back. It gets into the crocodiles jaws,
Should women ask their doctors for more
cancer is in bone only.
but prevents them from shutting fully.
tests while they are taking Tamoxifen –
Women who have had surgery for
This blocks up the receptors so that the
cervical examinations, liver function
DCIS, where it reduces the risk of a
real food, oestrogen, cannot get in.
tests, eye tests, etc?
further cancer in both breasts.
Tamoxifen is called a receptor blocker. It
The issue of whether an ultrasound of
Women at high risk of breast cancer,
deprives the breast cell of a growth signal
the womb at regular intervals is necessary
e.g. strong family history, to prevent
and in time it will die.
has not been resolved, and is not recom-
the disease.
Other cells in the body with identical
In each case, the potential benefits
mended by the Australian Gynaecology
oestrogen receptors to the breast will also
need to be weighed against the side
College. Pap smears look at the cervix
get starved of oestrogen – the ovary,
effects and the decision individualised.
rather than the lining of the womb, and
pituitary gland, lining of the vagina.
although they are a routine health
How does it work in the body?
However, a second type of oestrogen
measure, are unlikely to pick up these
receptor occurs in bone, heart, veins,
Normal breast cells get messages from
problems. Any bleeding after menopause
hormones such as oestrogen to tell them
liver and the lining of the uterus. This
should be reported and an ultrasound
when to grow. The hormones bind to
other type has wider jaws and
+/– curette arranged. Most bleeding
receptors on the cell, and the receptor
Tamoxifen can fit in further. The jaws
will not be cancer, but it's important to
carries them into the nucleus, or brains of
have symptoms checked out.
the cell, where they bind to DNA and
The effects on the eye are of uncertain
New drug available
set genes in motion to promote growth.
cause, rare and get better when the drug
Imagine that the receptor is shaped like
Raloxifene, a drug which protects
is stopped. The American Academy of
the jaws of a crocodile, and the oestro-
against bone fracture and may reduce
Ophthalmology recommends an annual
gen fits in neatly, whereupon the jaws
the risk of breast cancer is on the
examination, but most problems have
pharmaceutical benefits list.
snap shut. Some cancer cells keep these
been reported with higher doses used in
The catch is that women must have
receptors, others do not (they have learnt
the past. If one experienced a change in
suffered an osteoporotic fracture
to grow without the signal, usually due to
vision while on Tamoxifen, it would be
before they can obtain a subsidised
damage to genes that become perma-
important to have an ophthalmologist
prescription for the treatment.
nently switched on).
(eye doctor) look at the back of the eye.
Who developed it and what has it been
effective than two in early breast cancer.
treatment of osteoporosis (after docu-
used for in the past?
Longer durations are being studied in the
mented fractures) in women without
ATLAS trial.
breast cancer, and appeared to have a
It was developed by ICI as a drug to
preventive effect similar to Tamoxifen.
stimulate ovulation (like clomiphene) in
Are there newer drugs which work in
the treatment of infertility.
It has not been tested in the treatment
the same way, but which do not have
of advanced breast cancer, and it has not
Does Tamoxifen cause menopause?
the side effects of Tamoxifen?
been tested in early disease to prevent
In women still menstruating,
Alternatives to Tamoxifen are
relapse (although it will be).
Tamoxifen may interrupt the cycle,
SERMs – selective oestrogen receptor
Like any drug available in this country,
causing menopause. Some women cycle
modulators, e.g. Raloxifene, Toremifene.
Raloxifene will only be subsidised by the
regularly on Tamoxifen, and some
Toremifene fits sideways into the jaws
PBS (i.e. the taxpayer) for the diseases in
ovulate vigorously, so contraception
of the crocodile, blocking both types of
which there is good evidence of effec-
needs to be addressed, as it is unsafe for
receptors – this lowers the risk of clots
tiveness, in this case the treatment (but
and endometrial cancer.
not prevention ) of osteoporosis.
It may not therefore have the same
Can Tamoxifen prevent or delay a
benefits at preventing osteoporosis and
Use for any other purpose requires the
recurrence or spread of breast cancer?
heart disease.
informed consent of the patient, andpayment of the full cost.
It is available for women with advanced
breast cancer, but has not yet been
Stay tuned, as a form a SERM may be
For how many years should women take
trialled in early breast cancer, so its
the ideal HRT – the benefits without the
ability to prevent relapse is unknown.
risks – so the pharmaceutical industry is
Five years has been shown to be more
Raloxifene has been tested in the
interested in these compounds!
Tamoxifen – is it for me?
Most of us are offered the oestrogen-
Sally Crossing,
From the pathology report I took
blocking drug, Tamoxifen, as part of
receptor status, tumour stage and
our adjuvant therapy.
grade, node status, etc.
It is probably the most commonly
Then I trawled through the articles
prescribed – and taken – drug for
looking for ones that had results that
breast cancer.
meant something for someone with my
My experience with Tamoxifen was
broadcast on ABC Radio National's
Doing an amateur ‘meta-analysis', I
weekly program,
Background Briefing, in
concluded that, with a chance of non-
October.
The Beacon team asked me
recurrence around 90%, Tamoxifen
to share it with you as an example of
would make a difference of about 2%
one woman's decision-making saga.
of non-recurrence over the next five
At 49, I was diagnosed and treated for
years, but none could say by how much.
To make sure I was on the right track,
early breast cancer – surgery, lymph
My gynaecologist recognised the
I sent my home-made profile and
nodes and radiotherapy. My surgeon
importance of this issue to me (and
findings to my specialists and each
then prescribed Tamoxifen.
perhaps the inadequate information for
confirmed my conclusion.
I was loath to start taking something
doctors and patients) and offered me a
Four and a half years on, I remain
that would block my precious oestro-
room in his hospital library for a day to go
recurrence free. Two per cent was not
gen. I was loath to cope with the side
through articles about the subject from
enough for me to take a drug with
effects. I was not convinced that the
medical journals.
known side effects, which would affect
incremental protection was going to be
That was an introduction to the strange
my quality of life, and whose long-term
worth a couple of years of swallowing
world of medical research-speak. It took
impact was unknown.
these pills. The longer term situation
some getting used to, particularly as it
While I am happy I was able to make
was also unclear.
was a few decades since Statistics I at
a decision by doing my own research, I
What to do? Where to turn for the
can't help feeling that this was not the
information I needed to make this
I developed a profile of my personal
way it should have been.
indicators using the pathology reports of
Perhaps a software program could be
I spoke to an array of medical special-
my tumour and lymph nodes. The
developed so that clinicians could give
ists, whose general advice was that
indicators are age, menopausal status,
more meaningful advice than ‘it will
Tamoxifen would improve my chance
age at first birth and age at menarche.
improve your chances'.
A positive experience
The mastectomy was radical.
Being a clever seamstress,
t 37 years of age, I felt that I
Karen Russell,BCNA board
she designed clothes and
had it all. As a senior execu-
sometimes, surprisingly
tive with a international
to her students, one breast
consulting firm, I travelled and worked
became a makeshift pincushion.
around the world.
My envied social life kept me entirely
We spent the summer
occupied during my little free time.
at her beach house.
I did not see my wonderful family
She insisted on midnight swims,
often, due to my working hours, but
car headlights illuminating
always knew they were there.
the water, but not exposing
Then there was a lovely home, great
her lopsided body.
car and financial security.
about finding enough information to
I never questioned my good health.
ensure I managed this situation and it
Our love did not see
Having been widowed 10 years earlier,
didn't manage me.
the scars or hidden pain.
I had also met a nice man and we had
I had excellent guidance from my
Instead we wanted to enjoy
begun dating.
doctors, breast care nurses and support
her crazy zest for life.
On January 9, 1996, I was diagnosed
group. This helped me make informed
Hear her loud laughter
with breast cancer and life took on a
decisions about my treatment and how
bounce over the waves.
new meaning.
to manage their impact on my life.
I had gone to my GP for a pap smear,
I have been blessed with a positive
We convinced her that
which I hadn't done for more than three
attitude and, as such, worked to make
the final experiment
years. While I was there, she insisted on
what appeared a major catastrophe into
should see the light of day.
performing a breast examination.
a positive experience.
Third time lucky, she said
Having not really taken much notice of
That was nearly four years ago. Now, I
such things, I was surprised when she
can say life doesn't get too much better.
did not overflow.
told me she could feel a lump.
There is a balance in my life I never
The doctor made the necessary
thought possible. I still travel the world,
arrangements for an investigation and
but now it is on holidays. I have an
floated fancifully away,
that revealed two more suspicious lumps.
enviable relationship with my family and
another had collapsed.
Further examination found the smallest
friends, whom I see as much as possible.
The one filled with rice
of the three lumps was a malignant
My health is precious and no longer
expanded and sank. And
tumour, so a lumpectomy was performed.
taken for granted.
we had laughed with her.
Having never been closely exposed to
I am still a senior executive with a
anyone with cancer, I thought this was
major consulting organisation, but have
The mastectomy was radical
just a hiccup in my life. I would be in
switched to one which has ‘balanced
but her humanness did not
hospital for a couple of days and then it
family life' as a core value.
disappear with the cancer.
would be back to the life I loved.
My social life is wonderful, but bal-
The day after the lumpectomy, my
anced with enjoyable quiet time at my
her homemade prostheses
breast surgeon told me the cancer had
new home, which I share with the
still make us laugh.
spread to my lymph nodes. She wanted
wonderful man I was dating at the time
me to undertake chemotherapy and
of my diagnosis.
Mairi Neil is the co-ordinator of the
He was a pillar of strength and support.
Mordialloc Writers' Group in Victoria.
My world fell apart. I immediately
We were married in March 1998.
This poem, about Mairi's aunt, who
thought about the major changes this
Today, I am on the board of the Breast
experienced breast cancer in 1962, has won
would cause in my ‘ideal' life – losing my
Cancer Network Australia and the Field
an Anti-Cancer Council of Victoria's
hair and having to end my new relation-
of Women organising committee.
Daffodil Day Literary Award.
ship so I could focus on these events.
It gives me a great deal of pleasure to
It is also part of an anthology, ‘Writers By
I pulled myself together, with the
share my experience with others embark-
The Bay', published by the Mordialloc
support of family and friends, and set
ing on this life-changing journey.
Writers' Group.
Letters to the Editor
Sandra Welsh,
hormone if they stop controlling their
Debbie Cain and
genes properly.
Lorraine Ardler atthe Women's
It seems that breast cancer cells that
Business Luncheon
can make PTH are able to grow better in
in Nowra, NSW.
bone. They release PTH and it stimu-lates osteoclasts to chew a hole for themto live in. This may also make calcium goup in the blood, which makes you feelyuk.
For a long time, we have been treating
Breast cancer is a major concern for
The Aboriginal and Torres Strait
high calcium levels in people with cancer
Australian women of all cultural back-
Islander Commission will provide funds
with drugs called bisphosphonates (e.g.
grounds and skin colours.
through Aboriginal Women's Grants to
Aredia, Bonefos). These work by
The most successful Australian Breast
make this an on-going event.
paralysing the osteoclasts.
Cancer Day lunch ever held in the
– Elizabeth Joyce, Community Devel-
It has been shown that if these drugs
Shoalhaven area was organised by
opment Officer, NSW Cancer Council
are given regularly to women with bone
Waminda, the South Coast Women's
metastases, they help stop bone damage,
Health and Welfare Aboriginal Corpora-
A recent issue raised the debate about
reducing the risk of fractures, improving
tion, and held at the Aboriginal Cultural
bone metastases. Internationally, this is
pain control and improving healing.
Centre, Nowra NSW.
an active area of research.
All of these things improve quality of
More than 180 women were enter-
What allows some breast cancer cells to
life, and the drugs have few serious side
tained by
Laddy Tirnrey's Aboriginal
grow in bone and not elsewhere is being
effects (compared with chemotherapy!).
dancers from Jervis Bay, accompanied by
unravelled. It seems to be due to their
They are expensive, but Aredia is
didgeridoo and clap sticks. Young
ability to produce a hormone-like
subsidised by the Commonwealth
Aboriginal singer,
Michelle Curtis, also
parathyroid hormone (PTH).
Government through the S100 scheme
charmed the audience.
This is usually only made by cells in the
and should be freely available to anyone
The guest speaker was
Debbie Cain, a
parathyroid glands in the neck, and only
with bone metastases from breast cancer.
breast cancer survivor and service
if we do not take in enough calcium.
It is administered monthly through a
manager of Wat-nitida.
To keep calcium constant in the blood,
drip over a few hours and can be safely
She spoke about her journey with
this hormone is released and stimulates
given with chemotherapy.
breast cancer and finished by encourag-
cells in bone called osteoclasts to chew
These drugs are of interest to the
ing all Koori women, as well as white
up bone matrix and release calcium into
general community because they
women, to have regular mammograms.
the blood. The calcium goes up, the
prevent osteoporosis, so science is actively
The day was attended by a group of
parathyroid cells sense it, the hormones
addressing this area from several angles.
local Koori Elders, who threw their
switch off and all is well again.
Stay tuned for new developments.
support behind the venture.
All cells have the potential to make this
– Fran Boyle, medical oncologist
Your feedback on The Beacon
We appreciate hearing from mem-
"What a wonderful, tangible support to
"Thank you for
The Beacon, as I live
bers, these are excerpts from letters we
all of us survivors fighting to live with joy
in a small town, it is a hand reaching
have received.
" … all of you who work on this
"I live in a rural area and it is great to
"Keep up the good work."
newsletter and have input into it get
have reliable, up-to-date information on
"It is great to receive my copy of
my hearty THANKS!'
trials and current research."
The Beacon – it always has information
"It's great for those of us who live
"Many thanks for the publication you
which is very helpful."
outside the capital cities to learn what
put out – it's of great interest."
"… I must tell you what a pleasure
is happening to support breast cancer."
"At last, I do not feel like the only
it was for me to find out about
"Thank you for your wonderful
woman in the world ever to have had a
The Beacon, because I felt so alone
"Love
The Beacon – it just keeps
"… it is interesting to read stories about
"It seems to be getting more interest-
getting better and better."
hope, support, survival, etc."
ing with each issue."
March 30-31: Second National Breast Care Nurses' Conference, ‘Breast Cancer
In February, Network co-ordinator,
Care into the Millennium', Sydney Hilton.
Lyn Swinburne, represented Austral-
Contact: Minh Arvin, Breast Cancer Interest Group, Concord Hospital, Concord, NSW 2139,
ians with cancer at the World
(02) 9767 5000.
Summit Against Cancer in France.
April 7-9: Third Australasian Lymphology Association Conference, ‘Oedema –
She was to be one of more than 100
future directions' (includes public seminar on lymphoedema on April 8), Carlton
leaders of governments, cancer
Crest, Melbourne.
organisations, researchers, and patient
Contact: (03) 9419 6199.
support and advocacy groups, to signthe Charter of Paris Against Cancer,
April 29: Breast Cancer Action Group (BCAG) Victoria general meeting, 2.30pm,
pledging to fight cancer and improve
Auburn Primary School.
the lives of people with cancer.
This meeting will discuss lymphoedema and issues coming from the lymphoedema
To read the Charter and
summit in April.
have a chance to sign it, visit
Contact: Sue Lockwood (03) 9878 0736.
April 30: BCAG NSW general meeting, 3pm, YWCA, Sydney.
Contact: Sally Crossing (02) 9436 1755.
THE BEACON
June 24: BCAG Victoria general meeting.
The Beacon is the newsletter of the
Contact: Sue Lockwood (03) 9878 0736.
Breast Cancer Network Australia.
June 24 or 25 (to be confirmed): BCAG NSW joint meeting with the National
Editor: Lyn Swinburne
Breast Cancer Centre.
Layout: Substitution
This will be an opportunity to review the progress since the 1998 Canberra
Your comments and items for the
conference, to update our Making a Difference report, to hear the latest develop-
next newsletter are welcome. Send
ments in breast cancer treatment and research, and about NBCC activities.
Contact: Sally Crossing (02) 9436 1755.
them to PO Box 4082, Auburn
September 3-7: Fifth World Congress of Psycho-Oncology, ‘A New Millennium, A
South, Victoria 3122.
New Momentum', Melbourne Convention Centre.
Contact: PO Box 1127, Sandringham, Victoria 3191.
• To include events in
The Beacon's winter issue (June, July, August) please
submit brief notices before the end of April.
Breast Cancer Network Australia
welcomes these groups under its
Congratulations to Network members
umbrella:• Mount Gambier Breast Cancer
Sue Smith, from Generations Produc-
Assoc. Prof. Linda Reaby, breast
Support Group (SA); and
tions, has won an award for the video
cancer survivor and Head of the School
• Ballarat Breast Cancer Support
which recorded the first
Field of Women
of Nursing, Canberra University, has
Group (Vic).
in Canberra during 1998.
been awarded the honour of Eminent
Discuss the Network with your
She won a bronze award for education
Scientist of the Year by the Interna-
group and let us know if we can
and training videos from the Australian
tional Research Promotion Council
create another link. There is strength
Video Producers' Association.
Contact: Gil Paulsen, PO Box 4082,
YOU'RE NOT YET ON OUR MAILING LIST?
Auburn South, Victoria 3122, phone(03) 9805 2500 or e-mail
Contact: Gil Paulsen, phone (03) 9805 2500, fax (03) 9805 2599, e-mail
[email protected] or fill in this coupon and send it to: Breast Cancer Network
Australia, PO Box 4082, Auburn South, Victoria 3122
In the next
• Clinical trials
State: . Postcode: . Phone: ( ) .
Send us your thoughts!
Have you had a diagnosis of breast cancer? ❑ Yes ❑ No
Source: http://6-168-53-117.rev.bulletproof.net/media/2220/10-beacon10.pdf
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